- We, over 600 participants in the European Congress on
Disability, meeting in Madrid, warmly welcome the proclamation of 2003
as the European Year of People with Disabilities as an event, which
must act to raise public awareness of the rights of more than 50
million Europeans with disabilities.
We set down in this Declaration our vision, which should provide a
conceptual framework for action for the European Year at European
community level, national, regional and local level.
PREAMBLE
- DISABILITY IS A HUMAN RIGHTS ISSUE.
Disabled people are entitled to the same human rights as all other
citizens. The first article of the Universal Declaration on Human
Rights states: All human beings are free and equal in dignity and
rights. In order to achieve this goal, all communities should celebrate
the diversity within their communities and seek to ensure that disabled
people can enjoy the full range of human rights: civil, political,
social, economical and cultural as acknowledged by the different
international Conventions, the EU Treaty and in the different national
constitutions.
-
DISABLED PEOPLE WANT EQUAL OPPORTUNITIES AND NOT CHARITY.
As with many other regions in the world, the European Union has
moved a long way during these last decades from the philosophy of
paternalism towards disabled people to one of attempting to empower
them to exercise control over their own lives. The old approaches based
largely on pity and perceived helplessness of disabled people are now
considered unacceptable. Action is shifting from an emphasis on
rehabilitating the individual so they may ‘fit in’ to society towards a
global philosophy of modifying society to include and accommodate the
needs of all persons, including people with disabilities. Disabled
people are demanding equal opportunities and access to all societal
resources, i.e. inclusive education, new technologies, health and
social services, sports and leisure activities, consumer goods and
services.
-
BARRIERS IN SOCIETY LEAD TO DISCRIMINATION AND SOCIAL EXCLUSION.
The way our societies are organised often means disabled people are
not able to fully enjoy their human rights and that they are socially
excluded. The statistical data that is available shows that disabled
people have unacceptable low levels of education and employment. This
also results in greater numbers of disabled people living in situations
of real poverty compared with non-disabled citizens.
- DISABLED PEOPLE: THE INVISIBLE CITIZENS.
The discrimination disabled people face is sometimes based on
prejudice against them, but more often it is caused by the fact that
disabled people are largely forgotten and ignored and this results in
the creation and reinforcement of environmental and attitudinal
barriers which prevent disabled people from taking part in society.
- DISABLED PEOPLE FORM A DIVERSE GROUP.
As with all spheres of society, disabled people form a very diverse
group of people and only policies that respect this diversity will
work. In particular, people with complex dependency needs and their
families require particular action by societies, as they are often the
most forgotten among disabled people. Also, women with disabilities and
disabled people from ethnic minorities are often faced with double and
even multiple discrimination, resulting from the interaction of the
discrimination caused by their disability and the discrimination
resulting from their gender or ethnic origin. For deaf people the
recognition of sign language is a fundamental issue.
- NON DISCRIMINATION + POSITIVE ACTION = SOCIAL INCLUSION.
The recently adopted EU Charter of Fundamental Rights acknowledges
that to achieve equality for disabled people the right not to be
discriminated against has to be complemented by the right to benefit
from measures designed to ensure their independence, integration and
participation in the life of the community. This synthesis approach has
been the guiding principle of the Madrid congress that brought together
more than 600 participants in March 2002.
OUR VISION
- Our vision can best be described as a contrast between
this new vision and the old vision it seeks to replace:
- Away from disabled people as objects of charity… and
- Towards disabled people as rights holders.
- Away from people with disabilities as patients… and
- Towards people with disabilities as independent citizens and
consumers.
- Away from professionals taking decisions on behalf of disabled
people …and
- Towards independent decision making and taking
responsibilities by disabled people and their organisations on issues
which concern them.
- Away from a focus on merely individual impairments…and
- Towards removing barriers, revising social norms, policies,
cultures and promoting a supportive and accessible environment.
- Away from labelling people as dependants or unemployable…
and
- Towards an emphasis on ability and the provision of active
support measures.
- Away from designing economic and social processes for the few…
and
- Towards designing a flexible world for the many.
- g) Away from unnecessary segregation in
education, employment and other spheres of life …and
- Towards integration of disabled people into the mainstream.
- Away from disability policy as an issue that affects special
ministries only.…and
- Towards inclusion of disability policy as an overall government
responsibility.
- INCLUSIVE SOCIETY FOR ALL
Implementing our vision will benefit not only disabled people but
also society as a whole. A society that shuts out a number of its
members is an impoverished society. Actions to improve conditions for
disabled people will lead to the design of a flexible world for
all. "What is done in the name of disability today will have
meaning for all in the world's tomorrow".
We, the participants in the European Congress on Disability, meeting
in Madrid, share this vision and request all stakeholders to consider
the European Year of People with Disabilities in 2003 as the start of a
process that will make this vision a reality. 50 million European
disabled people expect us to give an impulse to the process to
make this happen.
OUR PROGRAM TO
ACHIEVE THIS VISION
Comprehensive anti-discrimination legislation must be enacted
without delay to remove existing barriers and avoid the establishment
of new barriers that disabled people may encounter such as in
education, employment and access to goods and services and which
prevent disabled people from achieving their full potential for social
participation and independence. The non-discrimination clause, Article
13 of the EC Treaty allows this to happen at Community level, thus
contributing to a real barrier-free Europe for people with disabilities.
Anti-discrimination legislation has proven to be successful in
bringing about changes in attitude towards people with disabilities.
However, the law is not enough. Without a strong commitment from all
society, including the active participation of disabled people and
their organisations in securing their own rights, legislation remains
an empty shell. Public education is therefore necessary to back up
legislative measures and to increase understanding of the needs and
rights of disabled people in society and to fight the prejudice and
stigmatisation that still presently exists.
- SERVICES THAT PROMOTE INDEPENDENT LIVING.
Achieving the goal of equal access and participation also requires
that resources should be channelled in such a way as to enhance the
disabled person's capacity for participation and their right to
independent living. Many disabled people require support services in
their daily lives. These services must be quality services based on the
needs of disabled people and must be integrated in society and not be a
source of segregation. Such support is in accordance with the European
social model of solidarity – a model that acknowledges our collective
responsibility towards one another and especially towards those who
require assistance.
The family of disabled people, in particular of disabled children
and people with complex dependency needs unable to represent
themselves, plays a vital role in their education and social inclusion.
In view of this, adequate measures for families need to be established
by public authorities, in order to allow families to organise their
support for the disabled person in the most inclusive way.
- SPECIAL ATTENTION TO DISABLED WOMEN
The European Year has to be seen as the opportunity to consider the
situation of disabled women from a new perspective. The social
exclusion faced by disabled women can not only by explained by her
disability but also the gender element needs to be considered. The
multiple discrimination faced by disabled women has to be challenged
through a combination of mainstreaming measures and positive action
measures designed in consultation with disabled women.
- MAINSTREAMING OF DISABILITY.
Disabled people should have access to the mainstream health,
education, vocational and social services and all the opportunities,
which are available to non-disabled persons. The implementation of an
inclusive approach to disability and disabled people requires changes
in current practice at several levels. First of all, it is
necessary to ensure that services available to disabled people are
co-ordinated within and across the different sectors. The accessibility
needs of the different groups of disabled people need to be considered
in the planning process of any activity and not as an afterthought when
the planning has already been completed. The needs of disabled people
and their families are varied and it is important to devise a
comprehensive response, which takes into account both the whole person
and the various aspects of his or her life.
- EMPLOYMENT AS A KEY FOR SOCIAL INCLUSION.
Special efforts need to be made to promote the access of disabled
people to employment, preferably in the mainstream labour market. This
is one of the important ways to fight against the social exclusion of
disabled people and to promote their independent living and dignity.
This requires, not only the active mobilisation of the social partners,
but also of the public authorities, which need to continue to
strengthen the measures already in place.
- NOTHING ABOUT DISABLED PEOPLE WITHOUT DISABLED PEOPLE.
The Year must be an opportunity to grant disabled people, their
families, their advocates and their associations a new and expanded
political and social scope, at all levels of society, in order to
engage governments in dialogue, decision-making and progress around the
goals for equality and inclusion.
All actions should be undertaken in dialogue and co-operation with
the relevant representative disability organisations. Such
participation should not only be limited to receiving information or
endorsing decisions. Rather, at all levels of decision-making,
governments must put in place or strengthen regular mechanisms for
consultation and dialogue enabling disabled people through their
disability organisations to contribute to the planning, implementation,
monitoring and evaluation of all the actions.
A strong alliance between Governments and disability organisations
is the basic requisite to progress most effectively the equal
opportunities and social participation of disabled people.
In order to facilitate this process, the capacity of disability
organisations should be enhanced through greater resource allocation to
allow them to improve their management and campaigning capacities. This
also implies the responsibility on part of the disability organisations
to continuously improve their levels of governance and
representativeness.
The European Year of People with Disabilities 2003 should mean an
advancement of the disability agenda and this requires the active
support of all relevant stakeholders in a wide partnership approach.
Therefore concrete suggestions for action are proposed for all relevant
stakeholders. These actions are to be established in the European Year
and continued beyond the European Year; progress should be evaluated
over time.
- EU AUTHORITIES AND NATIONAL AUTHORITIES IN EU AND ACCESSION
COUNTRIES
Public authorities should lead by
example and therefore are the first but not only actor in this process.
They should:-- review the current scope of Community and national legal
frameworks aiming at combating discriminatory practices in the fields
of education, employment and access to good and services;
- initiate investigations into those restrictions and
discriminatory barriers that limit the freedom of disabled people to
fully participate in society, and to take whatever measures are
necessary to remedy the situation.
- review the services and benefits system to ensure that these
policies assist and encourage disabled people to remain and/or become
an integral part of the society wherein they live.
- undertake investigations on violence and abuse committed
against disabled people, with particular attention to those disabled
people living in large institutions.
- strengthen legislation on accessibility to ensure that
disabled people have the same right of access to all public and social
facilities as other people.
- contribute to the promotion of the human rights of disabled
people at world wide level by participating actively in the work to
prepare a UN Convention on the rights of disabled people.
- contribute to the situation of disabled people in developing
countries by including the social inclusion of disabled people as an
objective of the national and EU development co-operation policies
The European Year must really occur firstly at the local level,
where issues are real to citizens and where associations of and for
people with disabilities are doing most of their work. Every
effort must be made to focus the promotion, resources, and activities
at the local level.
Local actors should be invited to integrate the needs of people with
disabilities in urban and community policy, including education,
employment, housing, transport, health and social services, bearing in
mind the diversity of disabled people, including, among others, older
people, women and immigrants.
Local governments should draft local plans of action on disability
in co-operation with representatives of disabled people and set up
their own local committees to spearhead the activities of the Year.
Disability organisations, as representatives of disabled people,
have a major responsibility to ensure the success of the European Year.
They have to consider themselves as the ambassadors of the European
Year and proactively approach all relevant stakeholders proposing
concrete measures and seeking to establish long lasting partnerships
when these not yet exist.
Employers should increase their efforts to include, retain and
promote disabled people in their workforce and to design their products
and services in a way that these are accessible to disabled people.
Employers should review their internal policies to ensure that none of
these prevents disabled people from enjoying equal opportunities.
Employer organisations can contribute to these efforts by collecting
the many examples of good practice that already exist.
Trade unions should increase their involvement to improve the access
to and maintenance in employment of disabled people and ensure that
disabled people benefit from equal access to the training and promotion
measures, when negotiating the agreements in the companies and
professional sectors. Also increased attention should be paid to
promote the participation and representation of disabled workers, both
within their own decision making structures and those existing in the
companies or professional sectors.
The Media should create and strengthen partnerships with
associations of people with disabilities, in order to improve the
portrayal of disabled people in mass media. More information on
disabled people should be included in the media in recognition of
the existence of human diversity. When referring to disability issues,
the media should avoid any patronising or humiliating approaches but
focus instead on the barriers disabled people face and the positive
contribution to society disabled people can make once these barriers
have been overcome.
Schools should take
a leading role in spreading the message of understanding and acceptance
of disabled people's rights, helping to dispel fears, myths and
misconceptions and supporting the efforts of the whole community.
Educational resources to help pupils to develop a sense of
individuality with regard to disability in themselves and others, and
to help them recognise differences more positively should be developed
and widely disseminated.
It is necessary to
achieve education for all based on the principles of full participation
and equality. Education plays a key role in defining the future for
everybody, both from a personal point of view, as well as a
social and professional one. The education system has, therefore,
to be the key place to ensure personal development and social
inclusion, which will allow children and youngsters with
disabilities to be as independent as possible. The education system is
the first step towards an inclusive society.
Schools, colleges,
universities should, in co-operation with disability activists,
initiate lectures and workshops aimed at raising awareness of
disability issues among journalists, advertisers, architects,
employers, social and health care-givers, family care-givers,
volunteers, and members of local government.
-
A COMMON EFFORT TO WHICH ALL CAN AND SHOULD CONTRIBUTE
Disabled people seek to be present in all spheres of life and that
requires that all organisations review their practices to ensure that
they are designed in a way that disabled people can contribute to them
and benefit from them. Examples of such organisations include: consumer
organisations, youth organisations, religious organisations, cultural
organisations, other social organisations that represent specific
groups of citizens. It is also important to involve places such
as museums, theatres, cinemas, parks, stadiums, congress centres,
shopping malls and post offices.
We, the participants at the Madrid congress support this Declaration
and commit ourselves to disseminate it widely, so it may reach the
grass roots, and we will encourage all relevant stakeholders to endorse
this Declaration before, during or after the European Year of People
with Disabilities. By endorsing this Declaration, we organisations
state openly our agreement with the vision of the Madrid Declaration
and commit to undertake actions which will contribute to the process
that will bring about real equality for all disabled people and their
families.